We are pleased to announce the launch of the Monash Cystic Fibrosis Foundation, a registered charity which aims to enhance the services provided by the Monash Cystic Fibrosis Service (MCFS) at Monash Medical Centre, Clayton and Monash Children's Hospital.
The MCFS is the only Cystic Fibrosis service in Victoria providing life-long care to its patients. The Service currently treats over 220 children and adults suffering from Cystic Fibrosis (CF).
CF is the most common, genetically acquired, incurable, life-shortening chronic illness affecting Australians today. It primarily affects the lungs and the digestive system, however, it can also affect several other organs and systems.
The Foundation’s CEO, Mrs Felicity Stretch said:
“While we wait for a CF cure, continued responsive and progressive medical treatment is critical. Medical practices in treating CF have improved greatly over recent years with the result that patients are now living longer. This, in turn, is putting increasing pressure on the medical services provided to adolescents and adults living with CF.”
“One day there will be a cure for CF but it is increasingly important that we keep patients as well as they can possibly be today, as it is likely that when a cure comes, existing lung damage cannot be reversed. The Foundation will support the Monash CF Service in its drive to provide world’s best standard of care for its CF community until a cure can be found.”
The Monash Cystic Fibrosis Foundation aims to assist MCFS in areas such as:
Assisting with the purchase of medical equipment
Supplementing MCFS personnel resources
Developing and assisting with programs which directly assist MCFS patients
Research into CF treatments.
The Foundation is governed by an Advisory Committee which has a diverse composition of members with a direct understand of living with CF, the treatment of patients and members that bring depth in varying skills and experience.
Mrs Stretch went on to say:
“The Foundation’s founding members recognised the need to address the gap in specific funding support for the Monash CF Service in the medical management of children and adults with CF. This support will also flow on to the Monash CF community, carers and patients’ families.”
Resource, equipment or program based projects funded by the Foundation are in most cases specifically identified by the Monash Health care professionals as a direct response to identified patient and carer needs.
There is as yet no cure for CF, but the Foundation strives to make a difference to the daily lives and patient care of CF children, CF adults, carers and their families being treated at Monash Health.
The Foundation has “tax deductible gift status” therefore all donations over $2 are tax deductible.
For further information please contact:
Mrs Felicity Stretch, CEO
Monash Cystic Fibrosis Foundation
Mb: 0414 660 941