ABOUT THE FOUNDATION
Founded in 2016 the Monash Cystic Fibrosis Foundation directly supports the services provided by the Monash Cystic Fibrosis Service (MCFS) at the Monash Children’s Hospital/Monash Health, Clayton.
The MCFS is the only Cystic Fibrosis centre in Victoria providing lifetime care, currently treating over 250 adults and children suffering from CF. Treatment is provided by a multidisciplinary team of CF consultants, physicians, physiotherapists, dietitians, social workers, nurses and other allied health professionals.
The Foundation aims to assist in areas such as:
• Purchase of medical equipment
• Supplementing MCFS personnel resources
• Developing programs that support patient care
• CF research.
Currently there is no cure for CF, but with advances in ongoing research one day there will be. A “cure” is unlikely to repair lung damage so the Foundation strives to assist the MCFS to keep children and adults battling CF as well as they can possibly be while waiting for that cure.
The founding advisory committee of the Monash Cystic Fibrosis Foundation recognised a need to address the gap in specific funding support for the Monash Cystic Fibrosis Service (MCFS) in the medical management of children and adults with Cystic Fibrosis. This support also extends to the Monash CF community generally.
The Foundation has tax deductible gift status so all donations are tax deductible.
The Monash Children’s Hospital/Monash Medical Centre is unique in Victoria as the only medical centre currently providing lifetime care to over 250 children and adults suffering from CF. As CF is currently incurable, responsive and progressive medical treatment is critical. Medical practices in treating CF have improved greatly over the years with the result that patients are now living longer. This, in turn, is putting increasing pressure on the medical services provided to adolescents and adults living with CF.
Resource, equipment or program based projects sponsored by the Foundation are in most cases specifically identified by the Monash health care professionals as a direct response to identified patient and carer needs.
While fundraising is important to the Foundation so project goals can be achieved our vision is that the Foundation also provides a friend-raising opportunity within our CF community.
Our current Advisory Committee Members:
A/Prof David Armstrong [Paediatric Physician, Director of Cystic Fibrosis - Monash Health]
Garry Cregan, Chairman
Dr Christopher Daley [Adult Physician, Cystic Fibrosis, Monash Health]
Kristina Seymour, Finance Director
Felicity Stretch, Founder/CEO